Huntington disease ethical issue

Ethical issues of huntington's disease?

Although glutamine is not found in excessively high amounts, it has been postulated that because of the increased vulnerability, even normal amounts glutamine can cause excitotoxins to be expressed.

The foster parents were not aware of the early health history of the children, but from their comments there was no convincing evidence of any clinical signs, or of juvenile onset, in either child. Peter Singer is one of the best publicly known advocates of animal rights and animal equality.

Culture, Kinship and Genes.

Ethical, social and legal issues in Huntington disease: the nurse's role.

Predictive genetic testing of children for adult-onset diseases and psychological harm. A further ethical issue to consider is the role of the genetics laboratory in testing children.

In both cases paternalistic decisions were made initially, which were not satisfactory, did not take into account all the ethical issues, and had to be altered later. One common form of this argument claims that moral status comes from the capacity to suffer or to enjoy life.

However, this time the report stated that both children had inherited the condition each with 50 repeats. Patient Educ Couns ;35 1: An international survey of predictive genetic testing in children for adult onset conditions.

There was a problem providing the content you requested

Discussion In both these cases the principle of respect for autonomy was in conflict with the rights of the individual. HTT also facilitates vesicular transport and synaptic transmission and controls neuronal gene transcription.

World Health Organisation, Predictive genetic testing in children: However, if the agency had informed the foster parents of the family history only, the autonomy of the children could have been maintained.

Ethical issues and Huntington's disease

J Genet Couns ;13 1: The foster parents were not aware of the early health history of the children, but from their comments there was no convincing evidence of any clinical signs, or of juvenile onset, in either child.

She explained that the autonomy of the children should be respected and their right to choose regarding testing at a later stage preserved. Her partner, who accompanied her to this first session, was very supportive, understood the situation and promised further support whatever the result was.

The Commercialization of Genetic Research: Context, appraisal and new moral imperatives. Such early onset would have been expected if the children actually had the high number of repeats suggested by the results of the second test.

In the context of predictive testing for HD, the questions are whether it is ethical to provide individuals with information about their future health when no treatment for the condition is available, what the beneficence, non-maleficence and justice issues are, and if the service is offered, how it should be conducted fairly.Ethical and Social Issues in Presymptomatic Testing for Huntington's Disease: A European Community Collaborative Study  European Community Huntington's Disease Collaborative Study Group ().

Seen in a broader perspective, the experience of presymptomatic testing for Huntington's Disease has given medical geneticists the opportunity to clarify their ethical position in the as yet little explored field of predictive medicine. Ethical issues and Huntington's disease The practice of genetic counselling gives rise to many ethical dilemmas, and counsellors need to be familiar with the principles of biomedical ethics.

The primary principles include respect for autonomy, beneficence, non-maleficence and justice. pilot having huntington’s disease: ethical issues surrounding the “sacrificial lamb” case THE QUESTION When the father of an airline pilot dies of Huntington's disease, the airline does a routine random blood/drug screening.

Ethical, social and legal issues in Huntington disease: the nurse's role.

Went L. Ethical issues policy statement on H untington’ s disease molecular genetics predictive test. International Huntingto n Association. World Federation o f Neurology.

Databases searched: Embase, Medline, Psycinfo, CAB abstracts, PsycArticles, [email protected] Search Terms – #1 Huntington's #2 Predictive Test #3 Ethical issues #4 1&2 #5 4 and 3.

Huntington's disease

Inclusion criteria – qualitative research in to solely HD; English language articles; dealing with ethical dilemmas only.

Download
Huntington disease ethical issue
Rated 5/5 based on 23 review